Friday, March 03, 2006

Wow, I'm half way through the chemo which is rather uplifting. Nearly half way through the radiation too. Can see a glimmer of light through the tunnel. Yesterday was fun, cos Trace came on Chemo duty so it was good to gabber all day and take my mind off things!

I laughed at Pip's comments about wearing nice undies - they are mainly girls who treatment and very efficient. I don't think they have time to notice the undies so at the moment it's still Bridget Jones ones as I still can't fit into anything else and also I get pen marks on me so wouldn't want to ruin anything nice. Oh for the return of days of little wispy things!!

Anyway things I've learned over the last week:

1. I don't feel bad on the actual chemo day. It's after that I feel crumby - buy the weekend I'm tired.
2. What they say about the metallic taste of chemo is true. It's constant. Highly flavoured sweets/lollies/candies are my friend. I first noticed it when I couldn't stomach a good old British cuppa.
3. I feel like a drug cocktail, which I guess I am. Was quite scared on Monday as I could'nt remember ANYTHING with out writing it down, was jityery and I couldn't focus. I still don't know how I held it together at work as it must have been v noticable - my boss did comment and said that I'd done a good job. mmmmm. The easiest way of describing it is if everything in my vision had moved slightly to the left and would keep shifting. They think it might be the steriods they have given me for anti nausea so they are adjusting my meds. Urgh.
4. There is no consistency to what I feel like eating on any given day. And what I feel like eating has no correlation on how I'll feel AFTER eating it.
5. Bananas and immodium are my friend thanks to the radiation.
6. Eating little and often helps. Miso soup is another life saver.
7. The jury is out on the low fat thing - it's supposed to help the diahrroea, but certainly's not stopped. It's hard to get enough protein and high fibre is hard to eat too. And veggies (unless in soup) turn my stomach which goes against all my normal eating. Fruit is great, partly because it combats the taste in my mouth.
8. While I'm being careful, chemo days are days when I am less strict. It helps to have the occasional treat.
9. Berry is now obessed with the water fountain - he gets stroppy it's turned off. H's new favourite seat is under the kitchen table listening to it flow!
10. Blue was a doctor or healer in a former life - he's being very attentive of me.

Thank you also for the other comments - I'm very appreciative of the support. Being at the Marsden I'm surrounded by amazing people. The staff are so great, but I'm also interested in observing others around me. I notice how some deal with things with grace - WHATEVER they go through and others just complain and are rude. I know it's hard to deal with all this but to me negativity is so toxic. It's not to say that we don't have bad days or arguments or tears, but why take it out on someone else who's trying to help. That said I'm sometimes ready to punch the metaphorical fat bloke on the tube who refuses to offer his seat after I've had a dose of radiation. But how is he to know? I still have my hair, no excessive weight loss. Should I wear a badge or stick a cushion up my jumper? Are manners too much to ask?

But people's attitudes make me laugh in the end - I was in the lunch room at work and the girls asked me how I was feeling (it was monday so bad) and I was describing it and one of them said "Oh I feel like that everyday!" It was not just me who gave a withering look. But this is the woman who complains when the lights are on in the office because they are too bright. I suppose she has her own problems but that's the scope of her experience, I just wish she could see how lucky she is.

Z xxx

4 comments:

Anonymous said...

Hi Zoe

That sounds, so far, well, upbeat.

OK, I understand that's your natural rest state but still...:)

I had a chuckle about your concern about not being able to remember ANYTHING.

I have a very dry sense of humor and reading that followed by your mention that you didn't know how you held it together at work combined with your comment about how everything in your vision had moved slightly to your left shouted to me that you are indeed ready to enter the public sector workforce.:)

All the best.

Jeff

Anonymous said...

Ah give the poor guy on the tube a break. For all you know he's got a herniated disc and is looking at you thinking bitterly "ah to be young and non-herniated ..."

Hurrah for you !! Half way through it all. I did notice on one of your postings at another place your typing/spelling was a trifle creative. You should rest more and not try to keep up with net life so much. You know we'll all be waiting patiently to hear from you when you're feeling tip-top again.

blondie said...

Rude VS Right lovely.....

1. Monday-itis VW Mums cooking
2.Public transport twits VS a quite sunday drive with a loved one
3. Lightheadness VS Lollies
4. Arseholds VS AnGels
5. Shitty days VS Saints (Marsden Miracle healers)
6. Loud mouths (of the rude kind) VS Sanity (getting your own)
7. Tantrums VS Tea (cuppa variety)
8. Left vision VS Hanging Left (LOL)
9. Bright lights VS Love 'n Kisses
10. Painful people VS pyjamas and ugh boots

Hope you like my ditti on your last entry.

Love u,
Your positivity is infectious

PK

Anonymous said...

Zoe, have you tried any kind of smoothies with added protien or other nutrients you're in need of? I know my best friend found out about a place local to us where among the myriad choices of delicious fruit and/or veggie smoothies, were choices specifically for chemo patients. I'm offering this despite the fact that my friend couldn't stomach even the thought of them, but everyone's tastes are different, and some people are able to take advantage of the smoothie/protein cocktails.

I love you, Zoe, and hope you are able to feel better soon.