Sunday, November 06, 2005

On top of everything Matt and I have very bad colds so are feeling v. sorry for ourselves and rather soggy. It never rains... But we had a lovely evening on Friday going to our local bonfire night and watching the fireworks, though somewhat ironically no bonfire.

Anyway we had news of all my tests on Thursday and the news is not bad - it looks like even though my cancer is stage 2 rather than 1b as first thought, I may still be in with the possibility of a thracheletomy rather than a radical hysterectomy (in other words fertility saving).

It's pretty amazing because this is very new surgery and very few women are eligible for it, but because I'm "young" for cervical cancer, and the cancer although invasive is contained, I'm one of the lucky ones. Also it's not available in many places in the world and often people fly to the UK for it so I guess location, location, location plays a bit part in it.

HOWEVER it's worth bearing in mind that although things are positive, they won't know for sure until they open me up, plus they are a little worried that one of my lymph nodes is swollen so these will be removed and tested. If it's cancerous it's out with the surgery and in with the chemo.

So we've moved a step forward, although it is a small one. Surgery now on 18 November rather than the 11th, as there is some sort of conference next week and they wanted all the surgeons to be around.

I am also having a bone scan on Tuesday - I have had some discomfort with my coccyx and so we agreed that it was a good idea to be a bit radioactive for a day just to double check. Of course it could be anything but a certain amount of paranoia kicks in.

I've finished work for a while - it was becoming too stressful for various reasons and Matt put his foot down when I was a wreck last week (as a mild mannered chap when he does put his foot down I tend to listen!). So I will probably need to have 2 or so months off as this surgery, even though not as radical as a hysterectomy, us that it effects your whole core so recovery is slow. Though I believe that the Royal Marsden physios are rather scary and they will have me moving asap. I'm glad of this - I don't want to be sitting around for two months and hope that I will be able to move around a bit. Apparently pottering is ok, but housework not!


I also wanted to add that I don't see myself as brave, I don't feel it really. You just have to get on with things the best you can. I'm grateful for all the love and support that I'm getting (though still not convinced about cabbage juice!) from friends and family, and from work. The other thing is, all the books that you read are about breast cancer and other types of cancer. On the whole most of the websites for cervical cancer are very dry and medical and you don't hear much about other women's experiences in terms of surgery (most women I know have had less radical treatment). So my hope is that eventually this will be useful to other women who might find themselves in my shoes. I had found a website called Hyster Sisters (only in America!) which is for women who have had hysterectomies and I found it very positive and informative - though I feel a bit of a fraud now!

As Ann said, with cancer there are a lot of silver linings. I guess that I am a secret Pollyanna - I'm not very good at feeling sorry for myself all the time (though with this cold it's easier) and she's right, there are lots of silver linings to be found. The fact is that this experience is in some ways life affirming - the good is very good and the bad is awful, but a lot comes into focus - I'm afraid I'm not very patient with people who are negative about the smallest things at the moment!

Wednesday, November 02, 2005

I've learnt three things this week.

1. My coping mechanism is grinding to a halt. I'm finding it really hard to put up with work
cr@p and the epic battle known as commuting. I don't have the energy to keep acting as if everything is fine.

2. I have developed cancer "tourettes". When people ask me how I am I just can't say "fine thank you". Before I know it I've said "well actually I have cancer". It's involuntary and then I feel awful that I've said it.

3. People are evil. Tired of people posting utter bollox as comments to my thread I have changed it so that only registered users can comment now. I figure if people don't want to be open about who they are then tough. I'm baring my soul here.

I had my CT scan yesterday. Results in clinic with Mr Ind tomorrow.

Discovered that Butler and Wilson have a shop near the hospital so bought some earrings - and yes I spent money on something frivolous. But hey, sometimes a girl needs cheering up.


And in response to Nancy's comment I have set up an Amazon wishlist - mainly rather camp DVDs (well if I'm going to be flat out I may as well catch up on show tunes) and lots of silly books I loved as a girl.