Wednesday, April 18, 2007
Overdrive
An Amazon order arrived yesterday. In it was a book called Cancer Vixen. One of my lovely godmothers saw an excerpt in the Melbourne Age and sent it to me. I laughed and cried and bought the book. It's a true story about a 43 year old New Yorker who is about to get married for the first time and is dignosed with breast cancer. It's all written in cartoon format (she's a cartoonist of course) and is hilarious, sad and everything else. It's exactly right. Well worth the read.
Ok, I have to stop procrastinating and get organised to go to Pilates and the hospital.
Z x
Wednesday, April 11, 2007
A right? Or a privilege?
It's not that I didn't want to become a mother, because it's what I've wanted for most of my life, but it was because the odds were so against us and the mental and physical toll on us was going to be too much, especially just before treatment. I still find it very hard to deal with - most days I'm fine, but I still have times where it's a hard thing to realise that you'll never have children that look like you.
But parenthood is more than just genetics and I think that should never be forgotten. It's a commitment. I feel for the ex partner who did not want to be forced to be a parent - and most particularly it was evident to me that he did not want to have children with her. It's a very harsh decision, but at the same time, he SHOULD have a say. Natallie said it's her right to have children - but it's not. Having children is a privilege and one that we take for granted to much I think. It's hardest for me when I see women who use their fertility as a statement - that don't think of the child and their life. Or those who take things for granted. I wish more women would see how lucky they are to have that chance, that they are blessed and have been granted a huge responsibility.
We may still adopt when we can. It's a scary prospect because of the responsibility that comes with it - but I think it would be a wonderful thing to give love and hope and opportunity to someone who needs it so much.
On the one hand, I understand that feeling of utter despair and grief that Natallie feels, but you can't be selfish about parenthood. To do that you're missing the point - in the end it's not about YOU, it's about creating a person and all that comes with it. I hope that Natallie can see that if she wants to be a parent she still has time. I suspect though that her need to have her own child has blinded her to other options.
Tuesday, April 10, 2007
It's been interesting over the last few weeks - I sent a campaigning letter for Jo's Trust off to some of our local press and MP's (both British and European reps) and it's been interesting to see the response I got. There's not been ANY response from Edward Davey, our local MP which I think is really poor. I know the guy is busy, but surely he has help in handling mail? It would be nice to get some acknowledgement. Most of our MEPs have been pretty useless too - I'd like to name and shame Robert Evans in particular.
BUT - a couple have been great. I quote:
Thank you very much for writing to me about the need for the Government to tackle the causes and incidence of cervical cancer. I have written to the Department of Health about this issue and will let you know when I hear from them. I hope, in the meantime, that you have also written to your Westminster Member of Parliament.
Best wishes John Bowis MEP
And
Thank you for your email addressed to Mary Honeyball on the subject of cervical screening and the new HPV vaccine. As a member of the European Parliament's Cervical Cancer Intergroup, Mary takes a keen interest in this issue and notes your concerns. She too has been very worried about reports that the number of women attending for screening is falling and she would like me to reassure you that she continues support efforts to increase this and is pushing for the early introduction of the vaccine.
Kind regards
Helen Hegarty
Assistant to
Mary Honeyball MEP
Plus our local freebie newspaper, The Kingston Informer, has been very supportive. :)This time last year I'd just finished treatment and Col was here. This time I'm starting afresh. I still get very tired - just about everyone I know who has had the same treatment says the same - but at least this time the chemicals are not in my body and I'm able to exercise.
This month I start my Pilates instructors course - I have a few weekends of Anatomy for the next months and then in July I start my training proper. I'm so enjoying my sessions with Lisa, as well as my home workouts and am very excited to be embarking on this. It's scary to think that I'll be running my own business and seeking clients soon, but I'm sure it will work out. Lisa says that she thinks I'll be good at it - the dance training from years ago helps, but also my experiences of surgery and so on help me understand what other people go through from a rehab point of view, which puts me into a different category to the gym bunnies. I've not lost any weight, but can feel myself toning up and getting much stronger. I always feel so confident and good about myself after working out.
Hope the sun's shining wherever you are.
Z x
Sunday, March 18, 2007
Image change
Wednesday, February 07, 2007
Highs and lows
Funnily enough I'm enjoying being at home. Someone asked me what I do. I don't know exactly but it seems that I'm running around - spring cleaning, and doing jobs that have been put to one side for ages. I'm seeing the house afresh and wanting to change things. And panning our trip to the US and just stuff really.
I've been to the House of Commons to lobby for the Cervical Cancer vaccine and am getting more involved with Jo's Trust and other charities - and in fact appeared on TV last week, being interviewed about my experiences with cervical cancer and the importance of smears. I really really enjoyed the experience and from the feedback I got, was quite good at it, so I may be doing more media work.
I've also started doing pilates sessions with Lisa and am investigating courses to train as an instructor - it's all very exciting and daunting and scary and very expensive so am formulating a plan.And in the middle of all this excitement, Gaffa died - he's Joss's father so technically not a relation, but as close to a grandfather as I've had for many years and just an amazing man. He'll be much missed as he was such an integral part of the extended family and dealt with everything with such humour and dignity. He was 94 years young.
I am going to write more about India but in the meantime here's a picture of me that Jayne took in Mumbai - I don't like pictures of me at the moment, but this one is one that I like.
Friday, December 29, 2006
Chapter 3: Ayerveda - mind body and soul
Back to the retreat where was a pretty set programme - you are examined by the ayurvedic doctor who looks at your tongue and asks about your symptoms and assesses your body type. Ayurveda is based on three body types - kapha, pitta, and vata.
I'm Kapha Vata - this is worked out by your physical make up, but also personality takes a big part of it. I have a kapha inbalance which meant that I'd put on weight and was lethergic and also had mucus overproduction - this was all spot on in terms of symptoms I was having and how I was feeling. Because of my cancer treatment I was not treated in the way they would normally treat this - instead I was under orders of no weight loss, gentle yoga and lots of relaxing treatments.
It is a very complex philosophy ayurvedic doctors train as long as western doctors and often in India combine the training - they are also not dismissive of western medicine, so they don't treat cancer for example but instead try and prevent it or rebalance the body after conventional treatment. We were never told what was in the medicines exactly - just that they were a mixture of herbs specifically formulated for each person. They all had varying degrees of yukkiness, from ick, to omigodthatwasdisgusting!

The yoga was wonderful - mainly astanga, but different to what you get here - much more spiritual (hindu) with lots of prayers in sanskrit. (Left, our wonderful yoga teacher Ganesh with Jayne).
After that we had monkey feeding (see below right!) and breakfast and then the day proper started - we had our treatments. The first couple of days were massage which is done with lots of oil and two therapists (all of the treatments are). Then for a few more days it was an oil bath where warm oil (a base of sesame oil with herbs) is dripped over you and rubbed in to your skin. Then for most people (not me) there's a steam bath and the day after that is purgation (or purgatory as we nicknamed it) which involves drinking medicated ghee and staying by a loo! I didn't do this as my body self purgates and in fact did so towards the end of the stay - which was part of the healing process.Then there's dhara which is oil slowly running onto the forehead, which is incredibly relaxing - it's hard to describe as each person's experience was different, but for me I found myself having vivid thoughts and actually wrote a poem as a result!
After treatment we rested and then had lunch. The afternoon was more resting (some of the treatments were quite exhasting in a way and after dhara you're not supposed to be stimualted), or yoga or trips to town etc. At 5.30 we had an hour of mediation.

We found that there was a lot of time for thought and reflection and in fact this was very useful to me - meeting so many wonderful people (more of them later!) in such an intense environment (intense in a good way) meant that we could share stories. In that time I realised that I am not coping with work and the negatitivity from some aspects of it. I love the company but not the job and it's not what I want to do. It's a bit of cliche, having a moment of clarity in India, but I think that it's a place that makes you realise what choices we have. And that karma does exist and it does happen. This out of focus dahlia is what I was looking at when I had my moment!
Wishing everyone a very happy and healthy New Year.
Om Shanti
Saturday, December 02, 2006
India. Chapter 2. Walking in the clouds
The retreat is around 2000m in the Nilgris (Blue Mountains). Small round cottages are tucked into the side of the hill surrounded by tea plants.
The weather constantly changes - clouts roll past, either engulfing us in damp air or rain or revealing blue skies and hot strong sunshine. It was hard to know what to wear - you were either too hot or too cold!
Our room (the bottom left in the picture) had a view across to the south east and over the valley - as well as to the yoga hall. This was useful as we could see when people were walking up and so we could make a dash and get a good spot before class.
Picture 2. Our cottage
In the mornings we welcomed the day at 6.30 with yoga. This was preceeded by the medicine man who delivered foul tasting potions with a winning smile. Yoga was a mag
incal experience - doing sun salutations and then sitting palms up as the sun floods into the room and into your hands. Even the torturous poses that we did did not seem that bad and we took it all with good humour and the occasional giggle as we were told to "inhayeeee" and "exhayeee" or to do the "gangeroo pose" and to "feel the benefit".
Picture 3. Medicine Man
Chapter 2, II - Tea
Sunday, November 26, 2006
India - chapter 1, the journey.
So I'll write bits and pieces when I can about my experiences. There's much to say so bear with me. Now, are you sitting comfortably? Then I'll begin.
Our journey was eventful to say the least. From the stresses of getting to Heathrow in rush hour on a Friday night to a check-in with a broken luggage belt, to security checks, to getting lost in Terminal 3 (don't ask) and having to go through security again to only just making the plane, whish was delayed any way... then being late to land in Mumbai and missing our connecting flight!! A very quick lesson in learning to go with the flow - essential practice in India!!!
Eventually a new flight booked and a madcap taxi ride through Mumbai to a part of town called Colaba, where we went to a hotel that J&J had sated in before - clean, basic and cool. And very very welcome.
Mumbai is a fear of sound and colour, almost too much to focus on. The traffic is fast and furious, there seem to be few rules excpet to stick to the left. Otherwise it's point and go. And hoot. A lot.
Every surface is covered with posters and flowers. Buildings crumble behind. There are people everywhere - drinking tea, selling fruit or shirts, or souvenirs, or tailoring on the street with old sewing machines, and of course begging.
"Please mama, bebe, mumma, eat mumma" It's relentless. There is evidence of ppverty everywhere. There's no disabled rights or benefits or care for the elderly on the streets. As the middle classes grow more powerful so does the divide between them and the poor. This is not a shock to me, as I have similar images imprinted on my brain from our time in Brazil, but nevertheless it's a reminder of how much we have in the west.
We ventured out, seeing the Taj at dusk and even more people gathering around it - peple selling balloons. kulfi, anything and everything.
Walking past shops is a bit like being in Brick Lane - every trader wants you to come and look - it's easier to say "later" than no, upon which you're handed a business card.
That evening we went to Indigo which is a popular and trendy Bombay restaurant - not traditional Indian but western (French/Italian) dishes with Indian spice. A risotto to die for.
The next day our travels resumed and this time our flight was undramatic. We arrived in Combiatore where we were met by Krishna the driver and fellow guest Anisa. It was a two hour journey where we saw another side of India - lush green plantations interspersed with colourful villages, which unlike here are not sleepy hideyholes but vibrant busy places.
More Indian driving - lots of honking and overtaking and weaving around people. goats, donkeys, chickens, dogs and the ubiquitous sacred cow.
We stopped for coconut water drunk from the shell and then this was broken and the tender flesh eaten. As we drove we shared stories of family and looked at pictures. As it grew darker we climbed higher into the mountains and the road became more and more bumpy.
More dodging of people and animals and other vehicles, waterfalls cascading down the side of the hills. Eventually it was dark and you could hear the water and soon we had arrived at the retreat.
Wednesday, October 25, 2006
Baby, you are born to run!!
Emma followed five minutes later and they both did so well given the weather was so awful. It was a torrential downpour for the entire duration of the race. Despite that the support team kept it's spirits up, assisted by the obligitary bacon sandwich.
Thanks for all the sponsorship - it means a lot!
Z xx
Tuesday, October 03, 2006
Anniversaries and adventures
I also had my 6 month check up which was good - again no sign of a recurrance. It's funny though because those checkups sort of remind me that there COULD be a recurrance so it's a bitter sweet time. Oh for the day that I'm told I'm in remission!
I have also changed my HRT. Menopause is not easy for me - actually I'm having a rubbish time. My HRT caused massive weight gain and also problems with my joints - so I'm a bit like a little old lady with a type of arthritis in my hands and feet. Not to mention the mood swings. Have been on this new HRT for a few weeks now so hopefully it will kick in.
In November Jayne and I are going to India to a retreat (aka yoga boot camp) which looks wonderful but hard work! I am very excited as it's my first trip to India and well be at the retreat for 2 weeks and then a couple of days in Bombay. It will be good to spend time with Jayne and see India with her, although I think we both will welcome the meditation at times!! ;o)
My lovely husband made the mistake of mentioning how he was inspired by Natalia's marathon and so was challenged to do the Great South Run. He's doing 10 miles raising money for the Royal Marsden. His sister Emma is also running, as are Chris and HIS sister Vicky, so there's quite a bit of competitive spirit! So please sponsor him as we're both so grateful for the wonderful treatment that the Marsden has given me. It will help him see that all the hard work and early mornings were worth it!!
Love
Z x
Friday, August 18, 2006
In black and white
NO EVIDENCE OF DISEASE
Wow. :o)
Z xxx
PS have made an appointment to see nice gynae consultant about my HRT at the end of the month. Mood is also helped by therapist. Shrinkage is good
Thursday, August 03, 2006
Wobbles
We've been dealing with being back at work and unusually hot weather for the UK in July. Now I know it's not hot in Aussie terms, but London is horrid when the temperatures reach over 30 degrees - no air con and high humidity and everything gets stinky. No one can sleep and everyone is grumpy.
Now add the the mix that I work for one of the world's top sandal manufacturers and you can get a picture of my world right now. It's very hard not to want to tell some of our customers to get a grip, that the world is not going to cave in because we don't have the shoes they want in stock and YES our delivery is one to two weeks because that's as fast as we can go right now. And actually I don't care that much, because really if that's their only issue in life, then life's not too bad. But of course I don't say anything. But just for the record, if you demand compensation because your sandals don't arrive in time for your holiday, you won't get any.
Despite various medications including HRT, menopause is hitting me like a train. Girls, it's like PMT but worse. Don't even think about not having drugs! I can cope with home and stuff but other things not so much. I'm not convinced that the HRT I'm dealing with is working for me so I've arranged to see the gynae that we saw about the fertility things as she offered to help. That's not until the end of the month so in the meantime I'm deep breathing and trying not to kill anyone.
Talking of which, it's been hard to keep things together as everytime we're out at any kind of function we get asked if we're planning a family. A note to people; DO NOT ask this of anyone, especially ones that you've only just met. Because it's a) rude b) people's own business and c) you might not get the answer you want. It bothered me when I was fertile and it sure as hell bothers me now. I can just about cope with my friends having babies and stuff (I'm a bit sensitive but can deal with it and am happy for them), but I will answer that no, we can't have children, and I will say why. If people are embarassed, well tough. Telling someone that you have just had cervical cancer may not be deemed proper in polite society, but nor is asking intrusive questions about one's sex life and other personal issues.
Anyway, I'm plowing through books about coping strategies and diet and stuff and I'm sure slowly I'll feel human again. I still have tummy issues so I can't eat some of the things they suggest which is slightly irritating.
On a positive note, I've had some cycling lessons - I think before that I only rode a bike once when I was about 15, but we didn't have a park that would allow bikes when I was growing up. Any way, I can now ride a bike, not on the roads yet, but still. I was very proud that I fell off and got back on again, Even if Matt did say that my leg looked like a piece of stilton due to the bruising. And am having more lessons which is good and we bought me a nice silver bike with a proper wicker basket on. So hopefully soon I'll be riding properly around Kingston! My aim is to do the London to Brighton next year, which will coincide with my, erhem, 40th birthday.
I finished my course with flying colours which has been great and I really enjoyed it. Not entirely sure where it will lead me, but its been great for my confidence.
So I do wonder sometimes when I'll start to feel vaguely human again. It's been a very wobbly time what with one thing or another, but I somehow manage to pick myself up and keep going. And sorry it this post sounds like a bit of a rant. I blame some of it on hormones, but a lot on the fact that some people are just a bit rude and insensitive at times, even if they don't mean it.
Love
Z xxx
Saturday, July 01, 2006
The Italian Job!
We had a tiny man made private beach that we had to walk down about 5 flights of very steep stairs to get to, and we had to walk up the same to get the the main road, which is the only road that takes you along the Amlfi coast so it's madness - scooters, buses, cars, pedestrians are all using the road, all apart from the pedestrians are at break neck speed around many hair pin bends. There was a lot of bus action and a lot of bus on bus action which always involved lots of horns and backing up and so on.
The nearest town was Minori - one of the least touristy towns on the coast and gorgeous. It still had holiday makers, but it's full of local charm and was relatively inexpensive. We spent a lot of time there and became tempoary locals, hanging out at the bars in the square, or eating gelati, or at a couple of great restuarants. The first week, for the most part Matt and I relaxed and slept and ate and walked and sunbathed.
One day we decided to walk to Ravello which is a steep up hill stair climb (about 1 mile) it was a beautiful walk past terraced fams of peaches and lemons. We saw mules bringing the lemons down and picked up ones that had been dropped. By the time we got to Ravello the weather had changed and there was a torrential downpour and we had to shelter in a shop. We did get back there another time and it really is a pretty town - amazing views. After the walk up there we had sore legs for days!
Matt's parents arrived on the Friday in time for the World Cup to start so there was more hanging out watching the footie. but as they brought a car we were able to travel around a bit more. My birthday was spent in Pompeii. Most of the artifacts are in museums but it's still worth a visit - we enjoyed it very much - it's big though and there's still a lot to see. We avoided Naples and the museums this trip.
We also visited Capri, and took a ferry there and back- very beautiful with some stunning walks. Also incredibly expensive. Mind shatteringly so. I bought a pretty handbag which wasn't too extortionate, but some of the designer stuff was ridiculous.Amalfi is also a pretty town but packed with tourists and not as friendly as some of the other places we visited. Found a wonderful handbag shop and another leather shop so it was worth visiting for those reasons!All in all we loved the area, and will probably go back.
Because we were staying in a villa we had the freedom to eat out or in - when we ate in we bought wonderful fruit (peaches etc) and tomatoes (the best I've eaten) and proscuitto and bread or made very simple pasta. For breakfast we had cereal (the locals thought we were made because italians don't really eat cereal for breakfast much) or went into town and had cornettos (croissants) that had surprise fillings, such as chocolate, marmalade or apricot jam. And we ate many multi course meals - lots of seafood - for much much less than you'd pay in London.
Being in Italy for the world cup was great fun - the local bars moved the TVs outside so we could watch the various games and there was a party atmosphere when Italy played. On our last night it was the Italy - US game and we were in the back with the locals - there was an audible sigh of relief when we cheered for Italy - they'd been giving us funny looks because they assumed we were supporting the US! And as our friendly waiter said "Theese country ees crazy".
I loved the Italians and the sense of community and the food was fantastic.
When I got back I had my first 3 month check up. So far so good. Next one is in September. Now we can enjoy the summer!
Z x
Saturday, June 03, 2006
This time tomorrow
I'm not sending postcards this time, but will be back in two weeks.
Ciao!
Z xx
Friday, June 02, 2006
Women's Hour
If you are interested there is more information on the Women's Hour webpage and they will also podcast it later today.
Friday, May 26, 2006
I'm feeling grumpy at the moment - work has been very stressful and while my team is doing well and I'm being productive, there are issues that I have no control over and it's causing ructions. And shouting. I've never been a fan of shouting at work, although have had several jobs where it was quite normal, but these days I can't cope with it. As a result it's been playing on my mind when I should be resting. Matt is on the verge of banning me from going in.
On top of that I'm frustrated with my lack of fitness. I "persuaded" Matt to do the Great South Run in October and although I'm not going to do it, I thought I could start training with him as I feel fat and lumpy at the moment. It's not going well - apart from the constant pains I get (symptoms post radiotherapy and/or menopause) I also get random bouts of diarrhea, which is a little limiting. I'm going to keep trying though, as well as doing pilates at home (Darcy Bussell has a really good DVD out which included lovely stretches).
Part of the problem is that I feel that some people at work (not my bosses thankfully) seem to think that I should be better now that my treatment is over. And it's not as easy as that. It's very depressing.
On a more positive note I'm doing this Women in Governance course (WinG) which I do on my day off on Thursdays. It's not too tiring and actually good because I get to use my brain and exercise the neurons. I'm also meeting some lovely women from Kingston and Richmond with diverse backgrounds and experiences. And the assignments are interesting too. My tutor has told me that Primary Health Care Trusts are keen to get women with my work and health experiences onto boards so it might lead to something interesting and worthwhile.
But it's a type of therapy, in that it's helping me feel better about myself. And I'll take any help I can get at the moment. I see my therapist this afternoon and am looking forward to a long weekend with Matt, and of course the holiday. And I'm enjoying the bits of sun in between the torrential rain that allow me to potter in the garden. It's looking lovely - there are little baby apples on the crab apple tree, and roses blooming, and strawberries and blueberries starting. And Matt's tomato plants are being kept company by aubergine, pepper and chili plants, and I planted beans yesterday. Let's hope the presence of the ginger Kray cats keeps the birds off. Next year I'm going to try potatoes in bags!
And if you think that I've turned into a mad hippy (or more of one than before), I'm feeling inadquate after dinner with Fran and other old friends and discovering that we were the only couple that DIDN'T have an allotment. We're all turning into Tom and Barbara's! We've even ordered a water butt. I'll be voting Green next. ;o)
Z xxx
Sunday, May 07, 2006
So please Tell Someone. We need to be educated more about the point of pap smears to protect other women from the experience that I'm dealing with. The irritating thing is that men carry HPV but they can't be tested for it!
Wednesday, May 03, 2006
I had a check up and so far so good which is a postive thing. I have to go back in June. Of course, because it was my margins that were not clear enough it's hard for them to measure, but they seemed pleased with me and I came out armed with HRT and instructions on how to deal with things post radiotherapy (bleurgh).
I'm very tired today - a bit of sunshine and people start buying sandals so it was a very full on at work this morning. But I'm also slowly trying to exercise as am feeling blobbish and have not been able to do much do to treatment (one forgets how much the pelvic area is used and effected by things). So am doing short bursts on the water rower in an attempt to do get fitter again.
We're both looking forward to our holiday in Italy, even though it's going to cost a LOT in insurance (yes, even Europe) and forget North America, it's almost impossible to get insurance for there if you have or have had cancer, which is depressing. As I'm hoping to do a trek to raise money for the Marsden next year, I hope that it is not too prohibitive - the one I'm keen on doing is to China!
Wil post again sooner next time!
Z xxx



